made with patients
49 Results found

UK Genetics Alliance

(TAIN) Treatment of Adrenal Insufficiency in Neonates

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Aku Society

AKU Society- DevelopAKUre

The DevelopAKUre initiative leads on patient recruitment and retention for three clinical trials, 'SONIA 1' and 'SONIA 2' (phase II and III), as well as 'SOFIA' (cross-sectional ob...

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CISCRP (Center for Information and Study on Clinical Research Par...


CISCRP is a first-of-its-kind non-profit organization dedicated to educating and informing the public, patients, medical/research communities, the media, and policy makers about cl...

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National Kidney Foundation


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Patients Like Me

Clinical Trial Access and Protocol Optimisation

Industry tends not to consult patients in the protocol development process. Many will look at what regulators have previously accepted into a trial, or translate lessons learnt fro...

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Patients Like Me

Clinical Trial Benchmarking

We ran an initiative where we applied a net promoter score to the clinical trial setting. There are widely available benchmarks for other industries (airlines, consumer goods and s...

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