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196 public resources (out of 200 resources in total)

UNDERSTANDING PATIENT-CENTRICITY: A BEGINNER’S GUIDE

This guide highlights key resources for people interested in learning more about ways to engage patients as partners in biomedical research, medical product dev...

Understanding stakeholders expectations for patient engagement - Qualitative Survey

A study designed to explore key patient engagement needs and expectations of each involved stakeholder group. This poster was presented at ISPOR Europe conferen...

Unmet Needs: Hearing the Challenges of Chronic Patients with Artificial Intelligence

“I wish I had been told that medications were only 30-50% effective before I started in 2010. I also wish I’d heard about possible negative side effects instead...

Users’ Guide to Integrating Patient-Reported Outcomes in Electronic Health Records

There is increasing interest in integrating patient-reported outcomes (PROs) in electronic health records (EHRs), but best practices for doing so are unclear. R...

Video NASEM Health and Medicine Division - Theresa Mullin

Session 1: Understanding Patient Experience with Disease or Medical Condition Theresa Mullin, Director, Office of Strategic Programs, Center for Drug Evaluat...

Visual Model of Patient Engagement in Benefit-Risk Assessment through the Medical Product Life Cycle

Engaging patient stakeholders in benefit-risk decision making throughout the medical product life cycle is key to meeting patient needs. This visual model, crea...

WHY PATIENTS SHOULD BE INVOLVED IN HEALTH TECHNOLOGY ASSESSMENT - Commentary

This commentary was developed as a result of participation (J.W.) in Policy Forum panel sessions at the Health Technology Assessment International (HTAi) 2013 a...

WORKING TOGETHER WITH PATIENT GROUPS - Document (September 2017)

The aim of this document is to underline the rationale for interactions between the pharmaceutical industry and Patient Organisations, suggest the principles on...

We are moving into a new era of patient emancipation - Video

Bettina Ryll, founder of Melanoma Patient Network Europe and Chair of the ESMO Patient Advocacy Working Group, shares her views about the development of meaning...