CISCRP Education Center
The Education Center can help you learn about clinical research and what it means to be a clinical research volunteer.
CTTI RECOMMENDATIONS: EFFECTIVE ENGAGEMENT WITH PATIENT GROUPS AROUND CLINICAL TRIALS
With the increasing commitment to Patient-Focused Drug Development (PFDD) by FDA and patient engagement in translational research, there is a significant opport...
Channeling the power of the "P" in patient-centricity - Video
The trend toward patient-centeredness is rapidly accelerating, ushering in a host of opportunities – and challenges – for eliciting patient input and integratin...
Collaborative Patient Engagement: Mapping the Global Landscape - White Paper
A first step in co-creating an action-orientated framework for patient engagement.
Conceptual and practical foundations of patient engagement in research at the patient-centered outcomes research institute
Purpose To provide an overview of PCORI’s approach to engagement in research. Methods The Patient-Centered Outcomes Research Institute (PCORI) was esta...
Cross-border healthcare - Factsheet
What is the Cross-border healthcare Directive? The EU Directive 2011/24/EU on the application of patients’ rights in cross-border healthcare creates a legal...
Culture and Process Change as a Priority for Patient Engagement in Medicines Development - Article
In this article, the PFMD coalition highlights the need to remove organisational barriers that prevent effective patient engagement.
DIA Patient Engagement Study Findings
DIA conducted a study in collaboration with the Tufts Center for the Study of Drug Development (CSDD) and found that 65 percent of pharmaceutical and biotech co...
DIA: Patient Engagement in Benefit-Risk Assessment throughout the Life Cycle of Medical Products - Conference Short Summary
The conference “Patient Engagement in Benefit-Risk Assessment throughout the Life Cycle of Medical Products” was targeted to patient partners (patients, family,...