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196 public resources (out of 200 resources in total)

Building harmonised ways to consistently talk to patients across countries at global scale - Video

"Listening to patients to deeply understand their experience was actually the only way to help them better".

CTTI RECOMMENDATIONS: EFFECTIVE ENGAGEMENT WITH PATIENT GROUPS AROUND CLINICAL TRIALS

With the increasing commitment to Patient-Focused Drug Development (PFDD) by FDA and patient engagement in translational research, there is a significant opport...

Channeling the power of the "P" in patient-centricity - Video

The trend toward patient-centeredness is rapidly accelerating, ushering in a host of opportunities – and challenges – for eliciting patient input and integratin...

Co-building a patient-oriented research curriculum in Canada

Foundations in Patient-Oriented Research is a course designed and piloted in Canada to build mutually beneficial relationships for conducting patient-oriented...

Collaborative Patient Engagement: Mapping the Global Landscape - White Paper

A first step in co-creating an action-orientated framework for patient engagement.

Conceptual and practical foundations of patient engagement in research at the patient-centered outcomes research institute

Purpose To provide an overview of PCORI’s approach to engagement in research. Methods The Patient-Centered Outcomes Research Institute (PCORI) was esta...

Cross-border healthcare - Factsheet

What is the Cross-border healthcare Directive? The EU Directive 2011/24/EU on the application of patients’ rights in cross-border healthcare creates a legal...

Culture and Process Change as a Priority for Patient Engagement in Medicines Development - Article

In this article, the PFMD coalition highlights the need to remove organisational barriers that prevent effective patient engagement.

DIA Patient Engagement Study Findings

DIA conducted a study in collaboration with the Tufts Center for the Study of Drug Development (CSDD) and found that 65 percent of pharmaceutical and biotech co...