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233 public resources (out of 237 resources in total)

Barriers to Patient Enrollment in Therapeutic Clinical Trials for Cancer - A Landscape Report

This report is meant to serve as a resource to inform discussions and actions aimed at addressing the barriers preventing patient participation in clinical tria...

Building harmonised ways to consistently talk to patients across countries at global scale - Video

"Listening to patients to deeply understand their experience was actually the only way to help them better".

CTTI RECOMMENDATIONS: EFFECTIVE ENGAGEMENT WITH PATIENT GROUPS AROUND CLINICAL TRIALS

With the increasing commitment to Patient-Focused Drug Development (PFDD) by FDA and patient engagement in translational research, there is a significant opport...

Changing the culture is a marathon not a sprint

Integrated knowledge translation (IKT) is built upon the premise that involving knowledge users as partners in the research process will result in science that...

Channeling the power of the "P" in patient-centricity - Video

The trend toward patient-centeredness is rapidly accelerating, ushering in a host of opportunities – and challenges – for eliciting patient input and integratin...

Co-building a patient-oriented research curriculum in Canada

Foundations in Patient-Oriented Research is a course designed and piloted in Canada to build mutually beneficial relationships for conducting patient-oriented...

Co-creation of patient engagement quality guidance for medicines development: an international multistakeholder initiative

Meaningful patient engagement (PE) can enhance medicines’ development. However, the current PE landscape is fragmentary and lacking comprehensive guidance.

Collaborative Patient Engagement: Mapping the Global Landscape - White Paper

A first step in co-creating an action-orientated framework for patient engagement.

Conceptual and practical foundations of patient engagement in research at the patient-centered outcomes research institute

Purpose To provide an overview of PCORI’s approach to engagement in research. Methods The Patient-Centered Outcomes Research Institute (PCORI) was esta...