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79 public resources (out of 79 resources in total)

A short guide to successful patient involvement in EU-funded research: Lessons learnt from the U-BIOPRED project

This is a short practical guide on how to involve patients across all stages of healthcare research. It is aimed at people writing applications for European Uni...

Barriers to Patient Enrollment in Therapeutic Clinical Trials for Cancer - A Landscape Report

This report is meant to serve as a resource to inform discussions and actions aimed at addressing the barriers preventing patient participation in clinical tria...

Building harmonised ways to consistently talk to patients across countries at global scale - Video

"Listening to patients to deeply understand their experience was actually the only way to help them better".

Collaborative Patient Engagement: Mapping the Global Landscape - White Paper

A first step in co-creating an action-orientated framework for patient engagement.

Crisis Management Toolkit

The complete toolkit to guide you through the process of creating a communication crisis strategy adapted to your organisation.

Culture and Process Change as a Priority for Patient Engagement in Medicines Development - Article

In this article, the PFMD coalition highlights the need to remove organisational barriers that prevent effective patient engagement.

Do's and Don'ts - practical tips for doing patient engagement

PFMD is co-creating a Patient Engagement Quality Guidance (PEQG) and as part of the Patient Engagement toolkit, we would like to collect the learnings from all...

Dr. Paul Robinson on Patient Involvement: “We need to give the doctors the tools that answer the needs of the patients” - Video

Paul Robinson is the Research and Development Director for EMEA Region at Merck Consumer Healthcare. He has a unique and first-hand perspective on what better...

EUPATI: An initiative to provide expertise in patient advocacy and in medicines development processes - Article

Grassroots movements by patient advocates, calling for greater involvement in decisions about healthcare research, have evolved to the point where publicly fun...