Type of report: Global
There are different types of patients partnering in the research to care continuum and variations in skills or expertise can affect the level of patient involvement. Understanding and mapping this patient diversity can allow us to capture trends, identify gaps, and define good practices. The Patient Expertise Matrix categorizes each initiative by type of patient involved and the associated level of involvement or partnership.. The Patient Experience Lifecycle Matrix has been developed to map initiatives based on phase across the care journey, type of patient involvement, and sector. This view closely aligns with the phases a patient experiences as they manage a medical condition and provides a perspective that will provide valuable insight to l diverse stakeholders.
Based on 269 Initiatives
SYNaPsE, the patient engagement landscape mapping project, aims to provide an efficient mechanism for accessing information on what patient engagement activities are ongoing or planned, and to identify challenges encountered and lessons learned.