Lay Advisor/Lead: EIT.H/HDR.UK/NICE/NIHR/NHSEI
I will listen to patients - both those who share my own background as patient and carer, and those with divergent experiences and backgrounds.
Work in progress
Lay Advisor/Lead: EIT.H/HDR.UK/NICE/NIHR/NHSEI
I commit to communicating what I learn as widely and effectively as possible to advance benefits across the system.
Work in progress
CRPS should remain a rare disease but bo longer an unknown disease
We have an ear for any patient and their relatives to share any information about our disease
Work in progress
CRPS should remain a rare disease but bo longer an unknown disease
Any patient can help with information and experiences to co-create a better general knowledge
Work in progress
CRPS should remain a rare disease but bo longer an unknown disease
Communication is the key, just informed patients can reach goals of a better life
Work in progress
Traceann Rose
I will communicate!
Completed
Traceann Rose
I will listen!
Completed
Global Head Clinical Patient Engagement -Chief Medical Office at Novartis
In my scientific network, I will raise awareness and encourage the researchers to do their absolute best to try to reduce the burden of disease and burden of clinical research participation for our patients by listening to their needs , understanding their journey, and transferring their voices in my organization so that we could deliver best solutions to our patients via our drug development activities .
Completed
I will work with patients when co-creating
Completed
