About the organization
Basic details : The Patient Focused Medicines Development (PFMD) group, established in 2015, is an independent multinational coalition, managed in collaboration with The Synergist. Its goal is to bring together initiatives and best practices that integrate the voice of the patient throughout the lifecycle of medicines development, thereby speeding up the creation and implementation of an effective, globally standardized framework.
PFMD seeks to have a balanced representation of stakeholders to ensure transparency, inclusiveness, and credibility. Stakeholders include patients and patient organizations across diverse areas of health and industry. We also intend to invite regulators, payers and other professional organizations to the global group to ensure diversity of perspectives.
Mission : By partnering with patients to design and develop new solutions, we can co-create methods for them to achieve their health goals.
To pave the path for new innovations in research and lifecycle of medicine development, we intend to improve the patient experience by prioritizing patient preferences and values and creating synergies across interventions which involve the voice of the patient.
We partner WITH patients.
Vision : Transform the way in which we understand, engage, and partner with patients globally in the design and development of research and medicines by focusing on unmet patient needs. We are bringing together and synergizing disparate but complementary efforts that integrate the voice of the PATIENT across the lifecycle of medicine.
Organization primary focus : Driving patient engagement through co-creation, collaboration, culture change and knowledge sharing
|Address||Avenue Louise 523, 1050 - Brussels, BE|
|Contact us for||General partnerships , Good case practice sharing , Opportunities for patient engagement collaborations , Speaking opportunities , Would you like to take part in PFMD's work streams? Contact the PFMD team to discuss more.|
|Organization main contact firstname.lastname@example.org|
|Phone number||+32 2 613 1637|
Medicines are developed to improve the life of patients, which requires a deep understanding of their needs and priorities. These can be gai...
OBJECTIVE By using the PE Quality Guidance that was co-created with patients and other stakeholders in the patient engagement (PE) and medi...
Background: PFMD published the Patient Engagement Quality Guidance (PEQG) in 2018 that was co-created together with 76 experts representing...
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PFMD Executive Director
The Patient Engagement Quality Guidance is a practical guide to planning, developing and assessing the quality of patient engagement activities and projects thr...
The Mapping and Networking Tool has been developed by PFMD as an integral part of a larger effort to build a connected and global patient engagement ecosystem.
Find out more about the Mapping and Networking Tool in a brief one pager. Make your patient engagement initiatives matter on the global stage!
I pledge to listen to patient needsCompleted
I commit to communicating our activities and outputs to patients and future patients so they can benefit from the work we are doing.Work in progress
I commit to thinking of patients first and last each time I communicate about health and medicine.Work in progress