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234 public initiatives (out of 324 initiatives in total)

The world around us is changing fast. New discoveries in biology, chemistry, genomics, digital technology, robotics and many other areas are transforming the healthcare industry at an unprecedented pace and are also chan...

For the new Novartis Commitment to Patients and Caregivers it was it was important for us to show how we can embed the patient perspective into our daily work, tangible across the organization and to the outside world. A...

In the first of Pfizer Rare Diseases Community Conversations” series, this session focused on personal stories of those living with Friedrich’s Ataxia (a rare neuro-muscular disorder). Patients, caregivers and scientist...

We have applied rigorous qualitative research methods used in human and social sciences to provide novel patient-centered perspectives and insights on diseases and treatments and explore which outcomes are most meaningfu...

To prepare to take a licensed drug into clinical trial for use in Parkinson's disease for the first time, the Principal Investigator on the study and Clinical Trials Manger from our organisation involved a panel of patie...

Cancer Council NSW values the views of the community we serve and represent. Cancer Council NSW is one of the largest non-government funders of cancer research in Australia and we are committed to involving consumers – c...

Cancer Voices’ Consumer Involvement in Research Program has nominated many trained consumers to research projects within around 25 research organisations to date. Researchers can request a suitable nominee via an electr...

Multi-stakeholder collaboration isn’t just the participation trophy of biomedical research and development (R&D), a nice way to make sure everyone feels included. No one organization or sector alone can bring a scien...

Global Patient Affairs and local compliance officers from the EFPIA countries (phase I) have been working on Country Cards covering the local rules of patient engagement. As more and more people are involving patients fr...