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233 public initiatives (out of 317 initiatives in total)

We have over 500,000 members across the 17 different chronic condition social networks we've launched. Three years ago, we began partnering with biopharmaceutical companies to do three things (1) treat patients like co...

TrialMark clinical trial services are pioneering the measurement of patient experience in clinical trials through the Patient Trial Experience Scale. Through an industry coalition led by PatientsLikeMe, and with industry...

There are three parts to the UK MS Register- 1. Participant portal- anyone who has been diagnosed with MS is asked to fill in a patient outcome measures questionnaire which has been developed by clinicians, which addre...

In 2014, Parkinson’s UK led a Priority Setting Partnership to identify the areas of research that would have the greatest impact on the management of Parkinson’s from the perspective of people with Parkinson’s, their fam...

Value+ Promoting Patients’ Involvement in EU supported health-related Projects. The basic premise of VALUE+ is that patients’ meaningful involvement enhances health project results, which can contribute more effectively...

We created a virtual reality application to describe mechanism of disease and mechanism of action of a therapy in clinical trials. Education of a paediatric population about mechanism of disease and mechanism of action...

Across the development journey of drug delivery solutions, making sure to collect the patients feedback : focus groups, user studies, online questionnaires, ... Integrate patients' input in the development journey of ph...

Rainbow Across Borders (RAB) is Asia’s first regional patient support group alliance which promotes regional collaboration and networking among patient support organisations. Rainbow Across Borders (RAB) aims to improve...

‘Working together, delivering for patients’ is a guide to collaboration between charities and pharmaceutical companies in the UK. It is to help both parties to consider the key benefits, issues and risks that can arise w...