53 Results found

UK Genetics Alliance

(TAIN) Treatment of Adrenal Insufficiency in Neonates

Asset 2

European Patients' Forum (EPF)

ADAPT SMART

The acronym stands for “Accelerated Development of Appropriate Patient Therapies: a Sustainable, Multi-stakeholder Approach from Research to Treatment-outcomes”. Its aim is to esta...

Asset 5

Aku Society

AKU Society- DevelopAKUre

The DevelopAKUre initiative leads on patient recruitment and retention for three clinical trials, 'SONIA 1' and 'SONIA 2' (phase II and III), as well as 'SOFIA' (cross-sectional ob...

Asset 1

CISCRP (Center for Information and Study on Clinical Research Par...

CISCRP

CISCRP is a first-of-its-kind non-profit organization dedicated to educating and informing the public, patients, medical/research communities, the media, and policy makers about cl...

Asset 1

National Kidney Foundation

CKDintercept

Asset 5

European Patients' Forum (EPF)

Chain of Trust

The "Chain of Trust" project assessed the perspective of the main end users of telehealth services across the EU to see whether and how views have evolved since the initial deploym...

Asset 2
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