70 Results found (incl. 22 hidden/private initiatives)

UK Genetics Alliance

(TAIN) Treatment of Adrenal Insufficiency in Neonates

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Santhera Pharmaceuticals

1st European Patient Groups Advisory Board meeting for Leber’s Hereditary Optic Neuropathy (LHON)

The 1st European Patient Groups Advisory Board meeting for Leber’s Hereditary Optic Neuropathy (LHON) joined patient groups from 7 different European countries. The patient advisor...

European Patients' Forum (EPF)

ADAPT SMART

The acronym stands for “Accelerated Development of Appropriate Patient Therapies: a Sustainable, Multi-stakeholder Approach from Research to Treatment-outcomes”. Its aim is to esta...

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UCB

AIDA Project

The AIDA Project is an internal programme at UCB to support the evaluation and development of future business models in Europe. We are looking at how we can approach the market in...

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European Patients' Forum (EPF)

Chain of Trust

The "Chain of Trust" project assessed the perspective of the main end users of telehealth services across the EU to see whether and how views have evolved since the initial deploym...

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Cancer Voices

Consumers In Research

Cancer Voices’ Consumer Involvement in Research Program has nominated many trained consumers to research projects within around 25 research organisations to date. Researchers can...

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