Contact Information

Organisation DrugStars
About I lead research and action for implementation of people-centered and value-based healthcare. For the past 20 years I have worked in senior international positions to apply behavioral sciences and people centred care principles to improve access to optimal medical care, including psychosocial and self-management support. Key competencies include: Patient-reported and patient-centred outcomes research - Theoretical, clinical and policy uses. Applied behavioral & psychosocial research (international, national, multi-disciplinary) Evidence-supported, systematic patient participation across the health care continuum. Use of patient insights data for health care improvement Leading organisational change for people-centred healthcare (academic, clinical, commercial) Stakeholder management, advocacy and technology innovation for people-centred health care.

Patient Pledge

Individual pledge to Patients is a demonstration unifying the whole research community with the same approach of a personal commitment to work with patients for patients. Taking the Pledge to Patients means looking at your everyday activities and asking, “is the patient perspective clearly addressed in everything that I do?” Taking the Pledge to Patients means committing to simple, measurable and sustainable patient-centred principles, that will lead to better and more meaningful patient and healthcare outcomes.

Making a Pledge to Patients involves commitment to 3 guiding principles: listening to patients, co-creating strategies and solutions with patients, and communicating openly and clearly with patients. Are you ready to commit?

I want to commit

0/1

Listen

  • I involve individual patients in all my research studies before I write the protocol and throughout the research process. I listen and reflect so patients genuinely influence the aim, scope and set-up with the end goal of bettering care and outcomes in mind at all times. I take the time whenever the opportunity arises to have individual conversations with patients, to be in the present with them and to actively reflect on what new information I gain and how I can use that to improve my impact as an ambassador, chief patient officer, and researcher in the field of patient-centred innovation and people-centred healthcare. I do scientific patient surveys to enable the wider healthcare community to listen to the needs, priorities, wishes and ideas of not just a few patients but of large and diverse patient populations.

    Work in progress
0/1

Co-create

  • I set up and host interactive patient workshops which bring diverse patient groups, including vulnerable populations together. The workshops educate and empower participants as they receive information and are invited to do homework to optimally share their priorities, insights and ideas with others at the workshops. I focus on enabling patients to empower each other, share ideas with one another and work creatively in multi-stakeholder environments to develop clarity on priorities and wishes to help guide national efforts. I involve patients as critical partners in the design of patient-relevant outcomes in the context of people-centred value based care.

    Work in progress
0/1

Communicate

  • I spend time every day communicating on behalf of and in support of patients. I educate about patient needs and advocate for putting patients first in all my communication activities, including when I co-author articles, train health care professionals, speak at congresses and meetings, chair and organise multi-stakeholder patient-centricity events, or partner with companies and organisations.

    Work in progress