To become the world's largest patient movementThat for every dose of medicine taken worldwide, a don...
MISSION FOR AALBORG UNIVERSITY 2016-2021 AAU contributes to the knowledge build-up of the global...
I lead research and action for implementation of people-centered and value-based healthcare.
For the past 20 years I have worked in senior international positions to apply behavioral sciences and people centred care principles to improve access to optimal medical care, including psychosocial and self-management support.
Key competencies include:
Patient-reported and patient-centred outcomes research - Theoretical, clinical and policy uses.
Applied behavioral & psychosocial research (international, national, multi-disciplinary)
Evidence-supported, systematic patient participation across the health care continuum.
Use of patient insights data for health care improvement
Leading organisational change for people-centred healthcare (academic, clinical, commercial)
Stakeholder management, advocacy and technology innovation for people-centred health care.
2 of 2 Initiatives
The Patient Engagement Quality Guidance (PEQG) started as a mapping exercise by PFMD members to firstly find out what guidance or principles...
Background: PFMD published the Patient Engagement Quality Guidance (PEQG) in 2018 that was co-created together with 76 experts representing...
Co-creation of patient engagement quality guidance for medicines development: an international multistakeholder initiative
Meaningful patient engagement (PE) can enhance medicines’ development. However, the current PE landscape is fragmentary and lacking comprehensive guidance.
I involve individual patients in all my research studies before I write the protocol and throughout the research process. I listen and reflect so patients genuinely influence the aim, scope and set-up with the end goal of bettering care and outcomes in mind at all times. I take the time whenever the opportunity arises to have individual conversations with patients, to be in the present with them and to actively reflect on what new information I gain and how I can use that to improve my impact as an ambassador, chief patient officer, and researcher in the field of patient-centred innovation and people-centred healthcare. I do scientific patient surveys to enable the wider healthcare community to listen to the needs, priorities, wishes and ideas of not just a few patients but of large and diverse patient populations.Work in progress
I set up and host interactive patient workshops which bring diverse patient groups, including vulnerable populations together. The workshops educate and empower participants as they receive information and are invited to do homework to optimally share their priorities, insights and ideas with others at the workshops. I focus on enabling patients to empower each other, share ideas with one another and work creatively in multi-stakeholder environments to develop clarity on priorities and wishes to help guide national efforts. I involve patients as critical partners in the design of patient-relevant outcomes in the context of people-centred value based care.Work in progress
I spend time every day communicating on behalf of and in support of patients. I educate about patient needs and advocate for putting patients first in all my communication activities, including when I co-author articles, train health care professionals, speak at congresses and meetings, chair and organise multi-stakeholder patient-centricity events, or partner with companies and organisations.Work in progress