Parkinson's UK is here to make sure people have whatever they need to take back control – from infor...
I work at Parkinson's UK as a Research Involvement Manager coordinating the charity's Patient and Public Involvement (PPI) programme through which we support researchers from academia and industry to work with people affected by Parkinson's throughout all stages of the research process. A key area of my work is focused on supporting patient and public involvement in medicines R&D, facilitating partnership working between researchers from industry and people affected by Parkinson's. I also work closely with a number of external organisations, contributing to national and global initiatives to develop resources to advance involvement in research.
Practical tips and advice for researchers on how to involve people affected by Parkinson's in research, including case study examples from basic and clinical sc...
I will consult with our contributors to capture their experiences and learn what they want our Patient and Public Involvement programme to look like moving forward.Work in progress
I will work with our contributors to develop training and resources to support them in their role.Work in progress
I will share our achievements and ongoing work with the Research Support Network and the wider Parkinson's community.Work in progress