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Organisation UCB

Patient Pledge

Individual pledge to Patients is a demonstration unifying the whole research community with the same approach of a personal commitment to work with patients for patients. Taking the Pledge to Patients means looking at your everyday activities and asking, “is the patient perspective clearly addressed in everything that I do?” Taking the Pledge to Patients means committing to simple, measurable and sustainable patient-centred principles, that will lead to better and more meaningful patient and healthcare outcomes.

Making a Pledge to Patients involves commitment to 3 guiding principles: listening to patients, co-creating strategies and solutions with patients, and communicating openly and clearly with patients. Are you ready to commit?

I want to commit

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Listen

  • Over the years I have been coordinating a number of patient volunteering initiatives in Belgium, to allow myself and other colleagues to pause from the daily tasks in live and get closer to our end customers. Effective listening and observing can’t be done with a preoccupied mindset so I am motivated to continue these activities. Think big, start small is my motto.

    Work in progress
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Co-create

  • I have signed up to co-launch a Belgian chapter of the European Patients’ Academy because I am convinced of the value this initiative will bring. Educating patients to enhance patient involvement in medicine development is a high priority on the health agenda. I am committed to work with patients, patient groups, academia and other stakeholder groups to make this initiative a success.

    Work in progress
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Communicate

  • I will challenge myself and colleagues around the world on the language we use in our communication. If we want to be equal partners, we need to speak the same language. I will continue to share good examples of patient involvement to showcase the value it brings and motivate others to do the same.

    Work in progress

Initiatives

UCB

Country rules of patient engagement

Global Patient Affairs and local compliance officers from the EFPIA countries (phase I) have been working on Country Cards covering the loca...

education

UCB

Evaluation of Patient Experience in Clinical Studies

To establish an understanding of the patient level experience through developing a consistent structured way to measure the experience of pa...

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